T-Shirts

I think I'm gonna go with "It starts with education. www.erdheimchester.com " for the T-Shirts. I think people are going to be more encouraged to donate once they learn more about ECD. Come to think of it, donations come in many forms. The message I get is, since our disease is so rare, research isn't warranted. So, it doesn't matter. Who's going to miss a hundred or so people?
With this methane emitting from DC, we could use folks to write, call, E-Mail, donate, etc. They need to realize that we're people with families and loved ones. As we've all heard, "The squeaky wheel gets the grease". Personally, I don't think we deserve to die and leave broken-hearted people behind just because we have a rare disease.
So, LET'S GET SQUEAKY!!!!

Je ne compren pas

Ya know. It's funny how family members (Mom not included) won't donate a nickel for research to cure a disease their own relative/in-law has, and it ain't the economy. My cause page at Facebook has been up for months, now. I've also sent out notices to my entire E-Mail list. I let them know about erdheim-chester.com, too. They can get more info, updates and/or donate on that site. What gets me is, I'm not asking for a bankroll. A dollar helps. But, guess who gets hit up for Girlscout Cookies or donations for some drive at school, and we have way less money to toss around due to my illness. With us it's whether we eat, have an abode and/or stay warm thru the Winter. Plus, we're not talking about some field trip or prize. My sight and/or life could hang in the balance with this disease.
Geez, I don't understand people!!

Results

Pleasant surprise. My doctor was very encouraging and told me no new growth was found on my MRI/CT scan. He was pleased to hear how dedicated I have tried to be in my exercise routine.
My wife and I celebrated on the way home by having lunch at Appleby's.
Yummy (My wife, not necessarily Appleby's)! :-)

More Radiation!

Well, went in for another MRI and Abdominal CT scan today. I'll get the results on the 22nd. I did find out the raspberry barium is my favorite so far.
I've been feeling great. So, I expect good news. :-)

Improvements

I've really become focussed and been fighting this disease. I've been walking, running (a little), exercising and doing some weightwork. I've also checked into supplements and cleanses and been using them as much as possible.
I've been feeling tons better, stronger and happier. I still have some cleanses to go ( I have to try them one at a time due to lack of income). I'm very optimistic, though.

Off my Derriere!

Finally got busy and made some phone calls about T-shirts, sponsorship and possible speaking engagements today. Man!! About time!

T-shirt Idea

Quick Qu. for those of you who know .01% to 99.9% about advertising and getting people's attention. I have the idea for a T-shirt to create curiosity on the street or when I start speaking engagements. How is, "ECD, IT CAN'T HAVE ME", for the front, and, "IT STARTS WITH EDUCATION: ECD at www.histio.org" on the back. Or, "SHOULD A DISEASE BE AN ORPHAN?!!"-Front and, "ECD at www.histio.org"? Whatcha think? Oh! The rhyme on the 1st one is unintentional.