Friday, August 15, 2008

Off my Derriere!

Finally got busy and made some phone calls about T-shirts, sponsorship and possible speaking engagements today. Man!! About time!

Friday, August 8, 2008

T-shirt Idea

Quick Qu. for those of you who know .01% to 99.9% about advertising and getting people's attention. I have the idea for a T-shirt to create curiosity on the street or when I start speaking engagements. How is, "ECD, IT CAN'T HAVE ME", for the front, and, "IT STARTS WITH EDUCATION: ECD at www.histio.org" on the back. Or, "SHOULD A DISEASE BE AN ORPHAN?!!"-Front and, "ECD at www.histio.org"? Whatcha think? Oh! The rhyme on the 1st one is unintentional.

Monday, August 4, 2008

Brochure & Speaking

The fearless leader of our chat group came up with a brochure explaining Erdheim-Chester in plain English. I got a copy today.
I've been working on contacts for venues and other opportunities. Hopefully it won't be too long now before I'm standing on my soapbox ;).
By the by, a new site that is up, thanks to my chat room cohorts, is www.erdheimchester.com. Very good site for learning about the disease, research and us. I'm very proud of the job my fellow combatants did.