Progress?!

Heath Shulers' office called again today. ,She needs a bit more info before she can put pressure on the insurance co. to cover Cladribine (Leustatin). One thing she needs is the manufacturer. Peace-o-cake, right? Wrong!! I keyed in "Cladribine Manufacturer", "Pharmaceutical maker of Cladribine", "Maker of Cladribine", even "I need to know what pharmaceutical company manufactures Cladribine", among other queries. But, each led me in the same circle of side effects, chemical structure, side effects. My scream of frustration could be heard by canine ears only.
I finally, after hours, tried a web address below the site link. Voila! There was all I needed at the Selleckchem site. This after I called my doc's assistant, gave her the name, number and info needed at Rep. Shuler's office.
Well, we at least got a connection established betw. our Rep.'s office and my Oncologist's. :-)
And, "progress" didn't beat me. This computer just doesn't realize how determined I can be. Go ahead! Mess with me! >:-/

Cladribine: Insurance Co.'s! Geez!!

Well, the first news on the Cladribine is that, because it is an experimental drug, it isn't covered. Since less than 350 people have been diagnosed with ECD in 80 yr.'s, any drug they use to treat it is "experimental".
So, I've contacted a local paper and NC's state Rep. The paper had me write an editorial for starters, and Heath Shuler has called me and sent an authorization form for info about me from other agencies. I just need to determine what documents I have that might be useful in helping his office understand my case. I think I've got some pretty good ideas.