A rare disease leaves man feeling blessed - Walter W. Comer - The Mountaineer

Finally got this published to inform the public a bit. A rare disease leaves man feeling blessed - Walter W. Comer - The Mountaineer

Life?!!

Don't worry. I'm not gonna go and do anything stupid or selfish. But, the road's end is beginning to look better all the time. I'm sick of feeling like a problem. I didn't ask for this damn disease, the meds or the side effects. But, it's looking like my trying to be responsible, honest and not risk a child's life is going to come close to ending our marriage, if not outright end it. If I'd croak it would solve many problems that exist in our life. If it wouldn't put me on the outs w/ God, whom I deeply love & do NOT want to disappoint, I could just stop Interferon and Testim. It wouldn't be any fun. The disease, however, would just do its job and get rid of one mouth to feed. I'm still here, though. So, God must still have work for me. That's ok. HE knows best.:-)
Yes. I still smile, enjoy warm, sunny days and time w/ my bud, "Curry".

Meds!!!

I find myself getting rather tired of the side effects of meds, especially Fentanyl, changing up on me. Changed my patch 2 days ago. Was really tired all of yesterday, my wife's day off :{. Got a good night's sleep last night and was still just as tired most of today. I'm very thankful for the aid my prescrips have offered over these yrs. But, I'll tell ya. I wish they'd find a better painkiller to wean me onto.
Found out at my last Oncologist's visit that Fentanyl is NOT the reason I've had a hard time controlling my emotions. Turns out it's actually the Interferon. But, MAN!!, if a show is touching or remotely sad, or if someone talks to me about a difficult time in their life, it is extremely difficult to hold back the waterworks!! Can get just a tad embarrassing!

MRI Time, Again

An MRI done in early May came back showing the pituitary growth is stable.
May 29, I reached 50. The docs didn't think I'd reach 49, maybe even 48. So, my wonderful bride threw a B-day blow-out for me. She's so great, and I'm so blessed. It was a celebration of life more than my B-day. But, I plan to see at least 75.
I think there are photos on her Facebook page (Kristine Comer).

Article

A friend from church brought me four possible publications to which I might submit the article. I'll have to mold it a bit differently for each mag/site. But, I have someplace to shoot for, now.

Endocrinologist visit and ECD article

The Endocrinologist was very pleased with my condition. He agreed that, after seeing my images in 2007, that he didn't think I'd live this long. They just don't understand how stubborn I am. :-)
Finished the article I've been working on. Folks like it. Hopefully I can get a magazine interested.

The Oncologist

The Oncologist was quite happy w/ how I'm doing. He's pretty impressed w/ my getting 90-100 hrs 13 of the last 14 patches (The one that was less was 89 hrs). But, we're not going to mess w/ anything new. He and I figure, why mess w/ a med that's working so well.
I've begun having pretty rough back aches, w/ no apparent cause, just below my mid-back. They started in my sleep Mon. or Tues. night and made breathing painful. The gels & creams do nothing. An hour or so w/ a heating pad eases or relieves them. Doc said not to worry unless they continue for an extended period (Folks have been paralyzed by ECD involvement around their spine/vertebrae). They have continued. But, I'm going to wait a month before calling him back about 'em. I'm going in May 11th for an MRI of the brain, anyway.
He also said not to worry about ECD in my jaw unless I begin having unusual pain in that area.