More Radiation!

Well, went in for another MRI and Abdominal CT scan today. I'll get the results on the 22nd. I did find out the raspberry barium is my favorite so far.
I've been feeling great. So, I expect good news. :-)

Improvements

I've really become focussed and been fighting this disease. I've been walking, running (a little), exercising and doing some weightwork. I've also checked into supplements and cleanses and been using them as much as possible.
I've been feeling tons better, stronger and happier. I still have some cleanses to go ( I have to try them one at a time due to lack of income). I'm very optimistic, though.

Off my Derriere!

Finally got busy and made some phone calls about T-shirts, sponsorship and possible speaking engagements today. Man!! About time!

T-shirt Idea

Quick Qu. for those of you who know .01% to 99.9% about advertising and getting people's attention. I have the idea for a T-shirt to create curiosity on the street or when I start speaking engagements. How is, "ECD, IT CAN'T HAVE ME", for the front, and, "IT STARTS WITH EDUCATION: ECD at www.histio.org" on the back. Or, "SHOULD A DISEASE BE AN ORPHAN?!!"-Front and, "ECD at www.histio.org"? Whatcha think? Oh! The rhyme on the 1st one is unintentional.

Brochure & Speaking

The fearless leader of our chat group came up with a brochure explaining Erdheim-Chester in plain English. I got a copy today.
I've been working on contacts for venues and other opportunities. Hopefully it won't be too long now before I'm standing on my soapbox ;).
By the by, a new site that is up, thanks to my chat room cohorts, is www.erdheimchester.com. Very good site for learning about the disease, research and us. I'm very proud of the job my fellow combatants did.

Oncologist visit

Once again the Dr. was pleased with my "progress" today. He did say the disease showed a very small amt. of growth, which led him to wonder about a thresh hold for the Interferon's continued success.
He also brought up my Hydrocephalus. The ventricles in my brain are larger than normal, and the exit for spinal fluid from my brain is smaller than normal. He is concerned about the possible long term affects of this, pressure from inside the ventricles pushing out. So, he is referring me to another neurosurgeon to discuss a shunt. Inside I sighed heavily, wondering if I hadn't been through enough already. Ah! God's gotten me through this adventure so far. Who am I to doubt that He can carry me to the finish? :-)
I asked him about Pegasys, a time released form of Interferon. He said, unless they found some remarkable progress through further studies, he didn't recommend a change at this stage of the game. Makes sense.
I am scheduled for another MRI & abdominal CT scan in mid October. The drama continues........

Gettin' it done!

With my wife's family coming for a visit to celebrate her nephew's leaving to begin classes at Tennessee, I've been busy working on the house and yard. I do it a little at a time. But, I've been pleased with the amount of work I've been getting done. Finished the grass, planted a hosta, pruned a couple of trees and black berry bushes, then come the dishes and laundry. I sleep well!!