Long time no see! :-)

Hey, hey!Interesting little adventure this morning. I'll leave out the long part. But, I wound up getting the # of someone at the bigger newspaper in Western NC. I called the lady there, and they may, at some point, be interested in doing a story or series on Orphan Diseases, one of which is Erdheim-Chester. It's possible, and I certainly hope likely, that this would increase knowledge of these illnesses, then jack up funding and attention. She seemed very interested and asked lots of questions. I'm a writer, not an orator. But, hopefully I did okay and tweaked her interest. I've begun a cause at Facebook:http://apps.facebook.com/causes/97118?fp=fb003&recruiter_id=16154293 , and am looking into that writing I talked about.
On Monday, 6/23, the opthalmologist reported he is very encouraged. My vision is about 20/25 and has maintained that for almost a year. He asked permission to use me as a case study for an upcoming conference. I should get him some attention, huh? :-)