Getting to know you.......

Well, hi there.
First off I'd like to say, be prepared. I'm gonna have good days and bad. See, I've got the honor of having a rare disease called Erdheim-Chester Disease, (http://www.histio.org/, http://www.thedoctorsdoctor.com/). While my wife and I have decided we're in it for the long haul ( gonna give this crud my nastiest low blows and rabbit punches), there are still days when I wish someone would just take care of poor little old me. Readers will get both sides of the coin.
'Kay. We've become determined that this thing can't have me. It's met someone with a double thick skull and a steel rod for a spine. My family knows the story before this weekend before Christmas (some other time). But, since that miserable three days, when I truly thought I was going to die, I've begun walking hard and fast, stretching, running up and down our steps, no matter how unsteady I am or how much it hurts, and just generally refusing to recognize the presence in my body (Maybe if I ignore it, it'll go away :-) ). I've remained steadfast in praying. I mean, without Him I wouldn't have a wonderful, beautiful wife; a gracious, supportive family or all of the fantastic blessings that are so abundant in my life. He's the Bomb, I tell ya!! I have honestly felt much better, after getting over the soreness, of course. I think I recognize me in there behind them eyes, again.
Ain't perty. But, it's me. ;-)