Well, went in for another MRI and Abdominal CT scan today. I'll get the results on the 22nd. I did find out the raspberry barium is my favorite so far. I've been feeling great. So, I expect good news. :-)
I am a unic. NO!! Wait!! I mean, I'm unique. You can read about my "AFFLICTION" in my Blog.
You can go to erdheim-chester,org
and see the technical jargon. But, my particular disease is when histiocytes ( the good guys) become too abundant and lodge in the tissue of organs. They begin to attract lipid cells, which surround the organ like a hard cocoon and stop it. They also like long bones, such as the legs. Before Interferon, a person normally died of congestive heart failure within two years of the diseases onset. The cure remains unknown. I personally am determined to help my fellow "Club" members by educating more of the public about these diseases.
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