I think I'm gonna go with "It starts with education. www.erdheimchester.com " for the T-Shirts. I think people are going to be more encouraged to donate once they learn more about ECD. Come to think of it, donations come in many forms. The message I get is, since our disease is so rare, research isn't warranted. So, it doesn't matter. Who's going to miss a hundred or so people?
With this methane emitting from DC, we could use folks to write, call, E-Mail, donate, etc. They need to realize that we're people with families and loved ones. As we've all heard, "The squeaky wheel gets the grease". Personally, I don't think we deserve to die and leave broken-hearted people behind just because we have a rare disease.
So, LET'S GET SQUEAKY!!!!
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