Found out there is going to be an Erdheim-Chester T-shirt to spur some interest. I've already ordered some for wifey, Mom and me. I'm excited about it. But, I'm hoping they'll be used to help with funding research.
I am a unic. NO!! Wait!! I mean, I'm unique. You can read about my "AFFLICTION" in my Blog.
You can go to erdheim-chester,org
and see the technical jargon. But, my particular disease is when histiocytes ( the good guys) become too abundant and lodge in the tissue of organs. They begin to attract lipid cells, which surround the organ like a hard cocoon and stop it. They also like long bones, such as the legs. Before Interferon, a person normally died of congestive heart failure within two years of the diseases onset. The cure remains unknown. I personally am determined to help my fellow "Club" members by educating more of the public about these diseases.
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