The Oncologist was quite happy w/ how I'm doing. He's pretty impressed w/ my getting 90-100 hrs 13 of the last 14 patches (The one that was less was 89 hrs). But, we're not going to mess w/ anything new. He and I figure, why mess w/ a med that's working so well.
I've begun having pretty rough back aches, w/ no apparent cause, just below my mid-back. They started in my sleep Mon. or Tues. night and made breathing painful. The gels & creams do nothing. An hour or so w/ a heating pad eases or relieves them. Doc said not to worry unless they continue for an extended period (Folks have been paralyzed by ECD involvement around their spine/vertebrae). They have continued. But, I'm going to wait a month before calling him back about 'em. I'm going in May 11th for an MRI of the brain, anyway.
He also said not to worry about ECD in my jaw unless I begin having unusual pain in that area.
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